
Alex wanted donations made to Rainbows for Kate, instead of flowers, at his funeral. If you would like to do something for Max/Alex and Vee, you can make a donation here. If you have a cancer charity in your home country that you prefer, I'm sure it would be similarly appreciated.
If you like the look of this dish, you can find out the story behind it and how to cook it here. Please take a picture when you're finished and help spread awareness of and raise funds to battle sarcoma.
Cook's notes:
I used 4 chicken thighs (deboned); about 2-3 tbl butter; maybe 5tbl of lime juice; 1 tsp crushed chilli (would have used more, but PB was eating it), about 2tbl cheat's chopped coriander leaves (from a jar - should have used more); maybe 1/2 tbl sesame oil; four pineapple rings (from a tin), and about 4-5 tbl of sultanas just covered with rum.
I also used a bit of the pineapple juice from the tin, added at the simmer stage, and reduced after simmering, covered.
The green stuff is julienned cucumber and some spinach leaves, which needed using up. They went in the leftover juices at the end, for maybe a minute (just until the spinach was wilted).
All juices left in the saucepan were drizzled over everything at the end.
I was initially sold after hearing "chicken" and "butter" in the same recipe, but even so I was surprised at how tasty it was. I didn't find it too sweet at all, and I'm sensitive to that sort of thing, but I did use a fair bit of cous cous and maybe I went light on the pineapple and rum.
It's funny. It's not really funny.
All week I've been opening my reader to look at the blogs, and then more or less just closing it again, a couple of minutes later. My eyes are kind of sliding off the posts. I haven't heard a word anybody's said.
Away from the computer, it's different - busy, bustling, self-involved. I have the luxury of being able to put the lid down on my laptop and thus gain a little precious distance, unlike Vee [invite only], who has to live wholly entangled in the day to day of having Alex gone. Me - for me it's moments like these, when I try (once again, again) to figure out what I'd like to say. I'm not sure what I'd like to say.
I've never been good at this. Others have written touching blogs, and Vee has the most heartbreaking post of all [invite only]. I keep searching, not so much for something to say, but for something to do, and it's eluding me somewhat, but here's a shot.
Alex wanted donations made to Rainbows for Kate, instead of flowers, at his funeral. If you would like to do something for Max/Alex and Vee, you can make a donation here. If you have a cancer charity in your home country that you prefer, I'm sure it would be similarly appreciated.
And if there's something more you want to do, how about joining me in this? Just over a month ago (on March 20th, to be exact), Vee sent me instructions for a dish Max concocted during a moment of respite [password protected] from the burdens of his illness. I'm going to the shop in a moment, to buy the ingredients. I probably can't recreate the exact dish, as it was sort of ad libbed in Vee and Max's kitchen as they went along, and I certainly can't recreate that day itself, complete with all its cast and crew. But I'd like to honour that moment, by putting this dish on my table over the weekend, and I'm hoping you do, too.
Here's how to join in:
- Read the instructions below, and shop for your ingredients.
- Cook the dish, or something close to.
- Take a snap of your dish and post it on your blog.
- Please leave this message at the top of your post:
Alex wanted donations made to Rainbows for Kate, instead of flowers, at his funeral. If you would like to do something for Max/Alex and Vee, you can make a donation here. If you have a cancer charity in your home country that you prefer, I'm sure it would be similarly appreciated.
If you like the look of this dish, you can find out the story behind it and how to cook it here*. Please take a picture when you're finished and help spread awareness of and raise funds to battle sarcoma.
*Alternatively, write your own tribute, including the recipe and instructions for joining in.
Links:
Rainbows for Kate - http://www.rainbowsforkate.com.au/
RFK Donations page - http://www.rainbowsforkate.com.au/donations.html
This post for recipe and instructions - http://infertilefantasies.blogspot.com/2010/05/chicken-la-moondance-max.html
Recipe
Ingredients:
- lime juice
- sesame oil
- fresh, chopped chilli
- fresh, chopped coriander (cilantro)
- sultanas
- rum
- chicken
- butter
- pineapple
- cous cous
"I can tell you that we marinated the chicken the night before in lime juice, a dash of sesame oil and fresh chilli & coriander. Also soaked the sultana's in rum the night before.
Then cooked the chicken in butter just so it gets a nice golden brown...( yes not very health conscious we never used butter but gosh it tastes so good!)
Take chicken out of the pan and cook pineapple in chicken juices.
Add a bit more butter and then throw in sultanas with rum (you can add extra rum if you like at this stage) and sit chicken on top of pineapple and sultanas and put a lid on the pan and let it simmer for a while so chicken cooks through.
Serve with couscous.
It can be quite sweet but if you eat it all together then it tones down the sweetness down a bit.
And an after thought we should have garnished the plate with a coriander leaf and some chilli...but hey Alex has been watching too many cooking shows!"
What if, because of the years lost to infertility, we miss important parts of our son's life?
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"Just gone?" I was standing on a footpath by the side of a road with Mr Bea, holding the handle of The Prata Baby's stroller, watching a red car disappear around a corner. The driver's last words - said with an eyeroll - had been, "You know how it is when you have a kid. Two years of your life - just gone!"
"It's not like twenty-four months are just sucked out of you for nothing," I complained.
"Yes, but, I'm sure you've noticed," Mr Bea replied patiently, "the first couple of years can be pretty all-consuming. You don't get much achieved apart from raising your child."
"I don't deny it, but at the end of those two years you have a two-year-old to show for your efforts," I persisted. "You haven't wasted those two years, you've chosen to spend them raising a child." Mr Bea patted me (rather condescendingly, I thought) on the shoulder, and sighed, and agreed that I was right, of course. We didn't have to delve further into it. We both knew I was comparing the act of raising a child to the years of failing to conceive one in the first place. There was no need to explain, to either of us, how infertility can eat up your time and energy and put your life on hold. How it can stop you from advancing a career, or experiencing that must-see travel destination, or renovating that house, or even just getting that dog, on the basis that the next cycle (or the one after that, or surely, at the outside, the one after the one after) will be the cycle that changes your lives forever - til one day, maybe two years later, maybe more, you look back and realise you've progressed more or less nowhere at all.
I say "more or less" nowhere. Of course, there is always one type of progress we can't avoid - the progress of time. We started trying at twenty-six years of age, not old by any means, but the end of my life only got closer during those years of failing to conceive, and that knowledge leaves me with a thought I can't quite shake, even now: infertility has robbed us of several years as a family. What if that means we miss an important milestone in our son's life? What if, because of those years lost to infertility, we miss the publication of his first book, his appointment to public office, or his graduation from Oxford? What if we miss his wedding, or never get to meet our first grandchild?
What if, because of those years lost to infertility, we're not there when he needs us most - during his mid-life crisis, personal bankruptcy, or marital breakdown? What if we're no longer there to see him through a life-changing medical condition - perhaps even infertility itself? We've no good reason to believe he's more likely than the next person to be the one-in-eight who suffers as we have - the fertility specialist guesses Mr Bea's ultra-low sperm count may be the result of a virus he caught as a teen, and The Prata Baby has already been vaccinated against that one - but infertility can strike randomly and without warning, so there's no reason it couldn't be our child, either. What if, because of those years lost, there's nobody to help him through, as only a parent can? There are some things you just can't get back.
But time is not only a thief. Whilst our lives were on hold, others were making remarkable progress in theirs, and I'm not referring to all those friends who managed to have two, if not three, consecutive children as we chalked up fruitless treatment cycles, one right after another. I'm talking about reproductive scientists the world over, who were working hard to try and fill our every question with an answer, even that pitiful one we cried during the dark hours after yet another loss: why me? I saw significant changes over the two years we spent with our clinic - new drug protocols to reduce the risk of hyperstimulation syndrome, improved embryo culture techniques, better pregnancy rates per cycle, new information on the causes and treatment of miscarriage. Because of this, as I gear up to transfer our remaining embryos sometime later this year, a new question dares to play in the back of my mind: What if, someday (soon?), assisted reproductive technologies just... work?
This week Resolve (U.S. infertility association) organizes National
Infertility Awareness Week. Get basic information about infertility here.
Mel enlisted the blogging community to give an insight into the various
ways infertility impacts people's lives, expressed so aptly by the two
words "what if?".
Part One of Project IF
Part Two of Project IF
---------->>>>
I want to tell you one last story before I go.
When we started IVF, there was a woman I knew of through a message board. Like us, she and her husband had started trying to conceive in their mid-twenties, and like us, they unexpectedly ran into male factor infertility. Unlike us, they ran the gamut of infertility treatments without result, and turned to inter-country adoption, which was no better. Ten years, they spent, pouring tens of thousands of dollars into a state-run system which invaded their privacy, tied up their lives, and then pulled the mat from under them just as they thought they were getting close, by suspending programs or simply shutting them down. With their fortieth birthdays looming on the horizon, they returned to their fertility clinic, half-hoping for a miracle, half-hoping for closure. They were battered and worn, and felt no closer to parenthood than when they'd started treatment over a decade earlier.
But after reviewing their history and running some tests, their doctor gave them this rundown: age had turned against them, so he couldn't guarantee anything, but a lot had changed since they'd last tried IVF, and he thought they still had a fair chance if they were willing to give it another go. As a bonus, IVF had also become more affordable since they'd last tried it - thanks again, to advances in technology - so they decided they had little to lose. Only a few years later they were a complete family of four - mum, dad, and two, consecutive IVF children, born two years apart, without complications. What a difference a decade makes. If I wasn't so busy trying to soak up what I have here and now, I would say I can't wait to see what the next one will bring.
I remember lying in hospital with OHSS, tubes everywhere, unable to rise without assistance, throwing up because I'd taken morphine for the pain and it wasn't agreeing with me. My mother was by my bedside. And one day she looked at me and said, "Is it really worth it?" And I looked back at her - rather cruelly in hindsight - and said, "Well you tell me, mum." She never answered. How could she?
Was she going to tell me I should keep trying again and again til I nearly killed myself, if necessary, and if it still didn't work that I should just know, for the rest of my life, that I had absolutely missed out in a quite enormous way? Or was she going to stand there and say, "Look, dear, I like you ok and everything, but I'm not that into you." That's the first reason I have trouble answering this question. I can't stand here and say something which might be misread as not loving my child enough, nor can I bring myself to perpetuate the myth that happiness is only to be found through procreation - for my child's sake, for anyone else's, and also in the name of truth.
These quibbles, however, are relatively easy to overcome. Without a bustling nurse to interrupt the awkward pause and set the conversation onto a new track, I could produce a cohesive version of the reality. I could talk about the many worthwhile things one can do in life, how parenting is one of them but not the only one, the strength it takes to overcome great odds in pursuit of great dreams, and the equally great strength - and wisdom - it takes to know the right time to walk away. I would rabbit on for a bit about how, as complex individuals, we will find that a variety of things satisfy us. Then there would probably be a few cliches - doors opening as others close, opportunities coming in strange guises, etc etc - and although I would stop short of waxing lyrical about silver linings, I would probably feel compelled to philosophise for a bit about the nature of love, the unknowableness of alternative paths not taken, and the extent to which someone who doesn't exist yet can have interests, and if so, what would those interests be?
But here's where I'd come unstuck: I wouldn't be able to provide a means by which to weigh any of this shit against any of the rest of this shit. And the reason, basically, is because we always have to answer the question in the absence of key information. And that's exactly where Julie also came unstuck earlier this week, when someone asked her the self-same question, and she tried, so honestly, to answer.
It's easy for the hopeful infertility patient to focus on their lack of information about the future. Of course it's impossible to predict what will happen, but where it really gets tangly is your uncertainty over how you'll feel about it. No matter how much you hear, read, and observe about parenthood, everywhere you will hear it said: "You don't really know what it's like til you've been there." This is, of course, true for any experience, technically speaking and to a greater or lesser extent, so much so that it's almost not worth noting out loud. I can buy a cafe latte every morning from the very same barista at the very same coffee shop and I can never really know if drinking it will feel the same tomorrow as it did today. Parenthood is, of course, a slightly more profound and altering experience - if anyone thinks otherwise, please tell me where you get your coffee - and so the expectation gap between what you envision and what you get is probably going to be a lot larger, or at least more significant. It is true, to at least some extent - and it weighs heavily on those still waiting - that parenting is yet another of those experiences you can't totally foresee*. And with others' responses to parenthood covering such positive and negative extremes, it's hard not to be at least a little nervous about where on the spectrum your own, personal feelings will lie. So we lack a lot of information about the future, but of this, we are almost painfully aware.
What is less obvious is how much information we lack about the past. Julie touches on our natural forgetfulness - that wonderful human inability to conjure up the full depths of our past unhappiness. I remember what it was like, from time to time, prompted by one thing or another, but no matter how vivid those memories feel, it's not the same as being there, living it, every hour, every day, with no end in sight. How can I possibly sit where I am now and weigh what I've got with what I went through, when I can't accurately recall what I went through? Even if I read through my own archives, tears in my eyes, there's always a little voice in the back of my mind singing, "It's ok - it's over now." No - it's impossible. It's lost. It's information I can only approximate at this point in time.
Even less obvious than our lack of information about the past, is our lack of information about the present. Have you ever read those psych studies where they get groups of undergrad students to perform certain tasks under various arrangements of threat or reward, and then conduct complicated questionnaires and interviews with them? Paradoxically, people tend to believe more earnestly in the inherent worth of a task the less they can see a corresponding reward - and they don't even know they're doing it. What this means is that, no matter how careful and honest I try to be with myself, I can't be quite sure how much my subconscious is adding in the background. And with a couple of years of infertility hell added on to the wails and dirty nappies of the "downsides" end of the equation, I suspect it's adding doubly hard. Woman is not rational, but rationalising, and I want, so badly - for our sake and our son's - to say yes, this is great, we love it, we're all in love, it's perfect, I wouldn't have it any other way.
Was it worth it? Is it worth it? The truth is that nobody can accurately weigh the effort against the outcome, because from every standpoint we lack the precise information needed to do so. Nevertheless, I have an answer.
Did you ever watch The West Wing? Did you see the one - I think it was season six - with Penn and Teller in it? Josh stops them in the hallway to question them about a trick they just performed at a private party in the White House. He wants to know, did they actually burn an American flag, or did they just make it appear as if they had burnt an American flag? "What difference does it make?" is Penn's answer, and he shrugs.
Do I really think I gained more than I lost through infertility, or does it simply appear that way from where I stand now, with the past paling into the background and my subconscious doing who-knows-what to close any potential gaps? What difference does it make? I am here, it is done, we are glad.
I have no idea what kind of person Julie's reader is. Perhaps that's not the answer she wants to hear. If not, there are plenty of others to choose from, and I guess she can take her pick. I do know that Infertile Bea of days past would have found immense comfort in hearing what I have written now. Upon finishing, she would have sat back and breathed out, feeling the world come back into focus as her head and heart gradually ceased their frantic spinning. Then she would have concluded: it's time to stop worrying so intensely about whether we're about to get it right. It's time, instead, to find peace in making the best choices we can with the information - incomplete and uncertain as it may be - we have here, at this moment in time.
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*I say this, although, to be honest, my biggest surprise regarding parenting is that it's almost exactly like I thought it would be. Someone asked me at one point how I was finding it, and I said pretty much like I expected, which I didn't see coming at all, which means that, really, it isn't like what I expected because I was expecting it to be different to what I thought it would be like, but then again, the unexpectedness of this fulfilment of expectation means that it probably meets my expectations of unexpectedness after all. Which is pretty much what I expected. Which...
Vote for Vee's photo in the Canon "Creative for a Cause" competition.
If she wins, $60k goes to a cancer research charity (Rainbows for
Kate). Voting ends today so hurry! More info on Vee's blog.
Or go directly to the voting page.
Thanks.
